BEREAVEMENT RESEARCH

Delivering pandemic funeral and bereavement care – shared learning

We have been on a steep learning curve to ensure that we continue to deliver the best possible funeral care, despite personal and professional challenges and the restrictions that must be complied with.  Early in November 2020 we spoke to more than 60 professionals across the Yorkshire area and asked them to share their experience and learning with us.  We have summarized these accounts into a short guide which aims to share this collective learning and help everyone to deliver the best possible care over the coming months.

We are grateful to everyone who contributed to the creation of the guide.  Contributors include Ministers, hospice chaplains, celebrants, funeral directors, florists, bereavement counsellors and charities, care home managers and specialist palliative care professionals.

Please don’t hesitate to get in touch if you have any comments or questions.  If you support people with funerals or bereavement in Yorkshire and would like to join a new closed Facebook peer support group then we look forward to seeing you there.

Specialists in providing for humanist serices. Civil celebrant available with Full Circle.
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Current Funeral Research

Very little research has been carried out to establish what constitutes a “good” funeral.  Sarah Jones, from Full Circle Funerals, is leading a study to identify which aspects of funerals people find helpful and to see whether funerals have an impact on long-term well-being. It is hoped that this knowledge will then be used to better understand how best to support people. Information about the first phase of this research can be found below.

During the first phase of the project, we asked only very open questions (because we wanted people to share their accounts without direction from the interviewer). Unprompted, many people spoke about how a body was cared for by funeral directors. These accounts have lead to more questions, which we are now exploring in more detail.

We currently have two active funeral research projects.  The first is to develop a validated questionnaire to reliably measure funeral satisfaction.  The second is to develop an in-depth understanding about ideas, concerns, expectations and current practice in how a body is cared for by funeral directors.  More details about these projects can be found below.

Validated funeral satisfaction score

There is currently no validated method to measure funeral satisfaction.  Without this measure, it is very hard to do any meaningful research to understand the impact that a funeral has after bereavement.  It is very hard to understand what good funeral care looks like, and how services can be improved to best meet the needs of bereaved people and families. 

In the next phase of this research, the five factors that have been identified in our previous research (see below) are being used to create a funeral satisfaction score. The development of a score involves developing a questionnaire and then testing it on as many people as possible.  The results (the more the better) are then analysed using statistics and mathematical modelling.  The best questions and structure then becomes clear.  The more thorough this testing process is, the better and more reliable the final score will be at measuring funeral satisfaction. 

This project is in collaboration with Dr Pete Branney from University of Bradford, and Dr Julie Rugg from University of York and we will be looking for participants very soon.

Specialists in providing for humanist serices. Civil celebrant available with Full Circle.
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Funeral Experts By Experience – Ideas, Concerns and Expectations about how a body is cared for by funeral directors

Ideas, Concerns and Expectations

We aim to understand people’s ideas, concerns and expectations about how someone is physically cared for after they have died (in the UK and before the Coronavirus pandemic). We have interviewed more than 30 participants, who have shared their experiences, expectations and concerns with us.  These rich accounts are now being analysed.

You will also find more information on the Research Study Flier and Participant Information Sheet.  If you have any questions or comments then people get in touch with Sarah Jones on 01943 262626 or [email protected]

Funeral Director Views and Practice

We also wish to understand Funeral Director’s views and practice regarding the way that they look after people in their care.  Care practices are not well understood and might vary from place to place.  We are very keen to understand how independent Funeral Directors practiced prior to the 2020 Coronavirus pandemic.  Over 250 independent Funeral Directors have generously taken the time to complete an online survey and this detailed data is now being analysed.

Specialists in providing for humanist serices. Civil celebrant available with Full Circle.
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Previous Funeral Research

Funeral Experts By Experience – What Matters to Them

 

In the first phase of our research, more than fifty bereaved people volunteered to be interviewed about their funeral experiences.  The report below details the five factors which were highlighted by the people we spoke to and makes several recommendations.  We are currently working towards a future project, which will seek to establish whether the presence or absence of these factors has an impact on long-term wellbeing.  

Sharing the findings of this research is a key part of raising awareness and changing practice.  The findings have have been shared in a number of academic and clinical publications including BJGP Life, Funeral Services Times, SAIF Insight and the ICCM Magazine.

More information can be found in the documents below and if you have any questions or are interested in taking part, please contact Sarah on 01943 262626 or [email protected]

Specialists in providing for humanist serices. Civil celebrant available with Full Circle.
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Funeral Experts by Experience Research Committee

The research project is supported, and endorsed by, an advisory committee with representatives from the University of York, Leeds Beckett university, ICCM (Institute of Cemetery and Crematorium Management), the Good Funeral Guide and SAIF (the National Society of Allied and Independent Funeral Directors).

Prior to starting Full Circle Funerals in 2016, Sarah worked as a doctor and in a number of health and social care settings.

Julie Rigg

Dr Julie Rugg is a Senior Research Fellow at the University of York. Her research interests include cemetery history and cemetery policy.

Terry Tennens

Whether it’s commenting on changes in legislation, consulting with other like-minded organisations or providing a comment for the media.

Fran Hall

Fran Hall is a former award winning funeral director who now runs the not for profit social enterprise company, the Good Funeral Guide CIC.

Julie Dunk

Julie Dunk is Chief Executive of the Institute of Cemetery and Crematorium Management. Julie has been working in Cemeteries and Crematoria for over 20 years and has a wealth of experience in all matters relating to funerals.

Specialists in providing for humanist serices. Civil celebrant available with Full Circle.
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